Friday, August 22, 2014

International Seminar on Autism 2014

I attended the seminar that was held in April for two days. The seminar's main objective was to raise awareness to autism, with the slogan "autism is not a tragedy, ignorance is"

It was an effort by the prime minister's wife who is also in charge of the Permata project. Being international there are participants from other countries as well as delegates from First Ladies who are wives of presidents and prime ministers. 

It was a commendable effort. However as a parent I don't feel that the event reached its main objective.

Take the example of an autistic child asked to leave the exhibition area because he was making noises. Mind that he was not in the seminar hall. Security was not aware of autism. Awareness was not achieved.

The best action was to let him be, so that people who has never know what autism is can experience and see with their own eyes, what autism is all about. Of course, each child would be different but having a real life experience is very beneficial.

For parents, most information are still vague and are the things that we are already aware of. It's even more depressing that most of the therapies and facilities discussed are not even available in Malaysia and I doubt they will be implemented anytime soon. Our kids are running out of time as we can't put them on stasis until those facilities are available in this country.

For rehabilitation centers and businesses, it's actually a good place for them to promote their service. A woman from a center actually talked to much, telling what her center offered, during the question and answer session. It's sad and selfish of her to rant about her center.

The sessions provided are mostly studies by academicians and parents are still left without better options.

What next?

On the positive side, we saw a school headmaster who came to learn more as a section for special needs has been placed in her school and she was extremely worried that teachers have not been given ample training.

Permata Kurnia, which is the autism arm of the Permata project will only serve kids in a certain age range... it looks like another money magnet to suck in our tax ringgits.

I have no idea what the government is doing, but it's not enough.

- Abah

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