We have been waiting and waiting for appointments with the orthoptist and eye specialist but they are very vague in providing us the next steps. It is as if they are not sure themselves on what to do next. They kept on mentioning corrective surgery.
It has been more than a year and the last time we saw the orthoptist the improvement was negligible and it was suggested that we extend the patch therapy to 5 hours a day.
In a way, we felt really confused as to what to do next or who to see next as it was all very vague.
Long story short, when #2 was born we had his eyes checked and the doctor saw that #1 was wearing spectacles. He introduced us to an excellent consultant optometrist who have excellent experience not only with eyes but with autism.
#2's eyes are good.
We continued to see the optometrist in Subang Jaya progressively and continued the patching therapy while forcing #1 to do eye exercises on paper. At first finding letters with bigger font size and gradually making them smaller from session to session.
During the first session we had to order a new pair of spectacles. The 2 or 3 sessions after that were free.
At the last session we had in July the optometrist confirmed that he no longer needs his patching therapy. Alhamdulillah.
Now, his eyes are fine in the sense that they are working together. He still is long sighted and has to wear his spectacles but it's improving. Next month we'll have another session with the optometrist and it's time for new spectacles.
In the meantime we still force him to look for specific numbers in a piece of paper. He hates the exercise... but thankfully Mama is trying hard to make him do it!
I am not sure how far we would have progressed if we waited for the original eye specialist and orthoptist. He might even have to go to surgery in the end...
As for the optometrist, I am not sure how she accepts her patients (since she work by appointment) but if you need to contact her please ask me via our email in the contact page. I value people's privacy. Hers and yours. I have, however included the clinic's phone number in Doctors/Specialist page.
As a conclusion, we learned that it is best to get second or third opinions especially if the office you're visiting looks like Dixon Hill's office. Go ahead, look it up :-)
- Abah
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