Our Patches From Patch Pizazz Has Arrived

We received a surprise in the mail on Saturday, when we were just about to go out to buy birthday presents for a birthday party on Sunday. The eye patches that we ordered has arrived.

When I looked at the declaration sticker I was amused when I saw "eye patch and confectionary", but it's true; they were nice enough to include lollipops inside. It worked to provide a little distraction. As usual there was resistance from our dear son.

We tried the one with the "racing car" design first. The material is soft and comfortable, and it fit perfectly on the spectacles. The leather material inside is black so it should cut off a lot of light and prevent peeking. This, is another reason for resistance as it's very hard to see with the lazy eye.

Being an Aspie, son has always been hard to try on new things but after some time he'll comply. We hope he'll like these better since the patches with adhesive does prove bad to his skin.

- Abah

My Aspergers Child: Preparing Family Members for Your Aspergers Child'...

My Aspergers Child: Preparing Family Members for Your Aspergers Child'...: The following is a letter (or email) that you can send to relatives and hosts of holiday gatherings who might need a crash course in what t...

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I think this is a great letter to those who are willing to learn, understand, and accept.

- Abah

More on Eye Patches

So the eye patches with adhesive didn't work so great after all. They irritate the skin, and are uncomfortable. The frustration from not being able to see clearly with the lazy eye is already bad enough.

Son has been very cooperative after some reassuring from us, but he does expresses his frustration a lot.

So Mama found this online shop in New Zealand that sells the nice patches that can be attached to the spectacles. They look comfortable. We ordered 2 pieces and have yet to receive them. Hopefully soon. Malaysian Customs can be a pain.

- Abah

Emotional Mastery for Adults with Aspergers - Practical Techniques to work through anger, anxiety and depression

This book in free on Amazon (Kindle Edition) for a couple of days. Although the link below is a referral link, I doubt I will get anything from the purchase while it's free.

 

- Abah

Eye Patch Therapy

We picked up son's spectacles on Saturday, and he has been wearing them during waking hours. There were minimal resistance, and we were pleased.

It was time to start his eye patch therapy. We started on Sunday, without initial resistance. The prescription is set to a maximum of 3 hours per day. However due to the hot and moist climate, his eyes became itchy and watery so at most we get so far is 1.5 hours.

There were a lot of frustration too, since he can't really see very well with his right eye. He kept on saying that he can't see, and cries which made it worst since the tears will disrupt the good eye under the patch.

The spectacles was pretty much an attempt to correct his right eye's vision and the prescribed power was +200, a lot less than the tested average of +500.

So we tried to calm him down and offer him rewards if he manages to wear the patch as long as he can.

In less than 2 weeks we should be seeing the ophthalmologist again to check on his progress.

I recently found an article in the Internet: Amblyopia treatment – Eye patching alone is no longer the standard of care, which made we wonder whether a different approach could be made or a different kind of therapy could be done.

"While the research shows that a child’s visual brain will show improvement in their amblyopic eye sight with a patching regimen, this “old school” approach (when used alone) can be very difficult and disruptive for the developing child to handle. It creates visual disorientation and confusion in spatial judgements. This in turn creates frustration and often emotional upset in the patient."

I have to agree with the quote above, about the frustration and emotional upset.

"Therefore today’s “best practices” approach for the treatment of amblyopia involves a combination of monocular and binocular training of the visual brain through office-based vision therapy. This is done with a vision therapist under the direct supervision of a Doctor of Optometry along with prescribed home-oriented visual activities to complement the weekly or bi-weekly in-office procedures."

Is there anyone here that can help us and provide a second opinion?

- Abah

My Aspergers Child: Reducing Hostility in the Aspergers Child

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